Engelli çocuklara sahip olan ailelerdeki kaygı düzeyi: derleme
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Tarih
2023
Dergi Başlığı
Dergi ISSN
Cilt Başlığı
Yayıncı
İstanbul Gedik Üniversitesi
Erişim Hakkı
info:eu-repo/semantics/openAccess
Özet
Amaç: Çalışma, özel gereksinimi olan çocuğa sahip ailelerde kaygı düzeylerini tespit etmeye yönelik yapılmış araştırmaların sistematik bir derlemesini yapmak amacıyla gerçekleştirilmiştir. Gereç ve Yöntem: Çalışmada, özel gereksinimi olan çocukların ailelerinin kaygı düzeyleri konusuna yönelik son 10 yıldır bilimsel araştırmalarda neler yapıldığı özetlenmiştir. Çalışma, Mayıs-Eylül 2023 tarihleri arasında “engelli çocuklar, özel gereksinimli çocuklar, özel gereksinimli çocuğa sahip aileler, kaygı düzeyi” kelimeleri geçen araştırma makaleleri taranarak bu kapsamda 26 araştırma makalesine ulaşıldı. Elde edilen makalelerin çalışmamız kriterlerine uymayan üçü çalışma dışı bırakılarak 23 makale incelemeye alınıp değerlendirilmiştir. Bulgular: İncelenen makalelerin büyük çoğunluğunun 2004-2023 yılları arasında yayımlanan makaleler ve bu derleme çalışması kapsamında incelediğimiz 23 makalede 3050 ebeveynin yer aldığı saptanmıştır (Tablo 1). Çalışma kapsamında incelenen makalelerin %47,7’sinin 2019-2022 yılları arasında yapıldığı (n=11) görülmüştür (Tablo 2). Yapılan çalışmalar, desenlerine göre incelendiğinde ise %75’inin nitel türde olduğu (n=16) ve %45’inin zihinsel engelli çocuğa sahip ailelere ait olduğu (n=10) saptanmıştır. Sonuç: Engelli çocuğu olan ailelerin fiziksel, duygusal, sosyal ve ekonomik bakımdan büyük bir yük altında olmaları, kaygı ve depresyon düzeylerinin artmasında büyük rol oynadığı yapılan çalışmalar doğrultunda saptanmıştır. Ailelerin kaygı düzeylerinin azaltılmasında, bireylerin aile içindeki sorumluluklarında iş bölümü yapılmasının bireyler üzerindeki yükü hafiflettiğini ve kendilerine zaman ayırarak daha mutlu olabildiklerini söyleyebiliriz. Ailelerin en fazla yakındığı konular arasında çocuklarıyla birlikte sosyal ortamlarda rahat zaman geçiremedikleri ve dolayısıyla asosyal bir yaşam sürmeye zorunlu kaldıkları belirtilmiştir. Bu anlamda da yapılacak olan toplumu bilinçlendirme ve farkındalık çalışmalarıyla engelli çocuğa sahip ailelerdeki kaygı ve depresyon düzeylerinin azalabileceğini söylemek mümkündür. Ailelere sağlanan bilgi, bakım, barınma, istihdam, danışmanlık, eğitim ve gelir düzeyini artırmaya yönelik desteklere ek olarak, topluma yönelik eğitimler ve birlikte uygulanacak projelerin engelli çocuğa sahip ailelerin karşılaştıkları zorluklarla baş edebilmeleri, yaşamlarını normale döndürebilmeleri ve yaşam kalitelerini artırabilmeleri, ayrıca kaygılarının azalması açısından büyük öneme sahip olduğunu düşünmekteyiz.
Objective: The study was conducted to make a systematic review of the studies conducted to determine the anxiety levels in families with children with special needs. Materials and Method: The study summarized what has been done in scientific research on the anxiety levels of families of children with special needs in the last 10 years. Research articles containing the words "children with disabilities, children with special needs, families with children with special needs, anxiety level" were scanned between May-September 2023 and 23 research articles were found in this context. Of the articles obtained, 3 articles that did not meet the criteria of our study were excluded from the study and 20 articles were analyzed and evaluated. Results: The majority of the articles examined were published between 2004 and 2023, and the 23 articles we examined within the scope of this review study include a total of 3050 parents (Table 1). It was observed that 47.7% of the articles examined within the scope of the research were published between 2019-2022 (n=11) (Table 2). The development of the studies according to their designs is that 75% are of qualitative type (n = 16) and 45% belong to families with intellectual disabilities (n=10). Conclusion: Studies have shown that the fact that families with disabled children are under a great burden in physical, emotional, social and economic terms plays a major role in increasing anxiety and depression levels. In order to reduce the anxiety levels of families, we can say that the division of labor in the responsibilities of individuals within the family helps to lighten the burden on individuals and that they can be happier by allocating time for themselves. Among the most common complaints of families, it is stated that they cannot spend comfortable time with their children in social environments and therefore they are forced to lead an asocial life. In this sense, it is possible to say that the levels of anxiety and depression in families with children with disabilities can be reduced through public awareness-raising and awareness raising activities. In addition to the support provided to families for information, care, housing, employment, counseling, education and income, we think that community-oriented trainings and projects to be implemented together are of great importance for families with disabled children to cope with the difficulties they face, to normalize their lives and to improve their quality of life, and to reduce their anxiety.
Objective: The study was conducted to make a systematic review of the studies conducted to determine the anxiety levels in families with children with special needs. Materials and Method: The study summarized what has been done in scientific research on the anxiety levels of families of children with special needs in the last 10 years. Research articles containing the words "children with disabilities, children with special needs, families with children with special needs, anxiety level" were scanned between May-September 2023 and 23 research articles were found in this context. Of the articles obtained, 3 articles that did not meet the criteria of our study were excluded from the study and 20 articles were analyzed and evaluated. Results: The majority of the articles examined were published between 2004 and 2023, and the 23 articles we examined within the scope of this review study include a total of 3050 parents (Table 1). It was observed that 47.7% of the articles examined within the scope of the research were published between 2019-2022 (n=11) (Table 2). The development of the studies according to their designs is that 75% are of qualitative type (n = 16) and 45% belong to families with intellectual disabilities (n=10). Conclusion: Studies have shown that the fact that families with disabled children are under a great burden in physical, emotional, social and economic terms plays a major role in increasing anxiety and depression levels. In order to reduce the anxiety levels of families, we can say that the division of labor in the responsibilities of individuals within the family helps to lighten the burden on individuals and that they can be happier by allocating time for themselves. Among the most common complaints of families, it is stated that they cannot spend comfortable time with their children in social environments and therefore they are forced to lead an asocial life. In this sense, it is possible to say that the levels of anxiety and depression in families with children with disabilities can be reduced through public awareness-raising and awareness raising activities. In addition to the support provided to families for information, care, housing, employment, counseling, education and income, we think that community-oriented trainings and projects to be implemented together are of great importance for families with disabled children to cope with the difficulties they face, to normalize their lives and to improve their quality of life, and to reduce their anxiety.
Açıklama
Anahtar Kelimeler
Engelli Çocuklar, Özel Gereksinimli Çocuk, Kaygı Düzeyi, Aile, Children With Disabilities, Child With Special Needs, Anxiety Level, Family
Kaynak
Sağlık ve Spor Bilimleri Dergisi
WoS Q Değeri
Scopus Q Değeri
Cilt
6
Sayı
3
